Surveys – Family Quality of Life
Survey Information
The Family Quality of Life Survey was developed by the Beach Center on Disability at the University of Kansas in partnership with families, service providers and researchers. The Beach Center has graciously granted Maggie’s Light permission to utilize this tool to measure the effect of respite and ongoing support services on the quality of life of families’ caring for children with developmental disabilities.
For further information contact:
Jean Ann Summers, Ph.D.
Research Director, Beach Center on Disability
jsummers@ku.edu
Survey Instructions
The survey is about how you feel about your life together as a family. We will use what we learn from families to inform policy makers and service providers for children and families.
Your ‘family’ may include many people i.e. mother, father, partners, children, aunts, uncles, grandparents, etc. For this survey, please consider your family as those people who think of themselves as part of your family (even though they may or may not be related by blood or marriage), and who support and care for each other on a regular basis. For this survey, please DO NOT think about relatives (extended family) who are only involved with your family every once in a while
The items below are things that hundreds of families have said are important for a good family quality of life. We want to know how satisfied you are with these things in your family prior to respite and ongoing support and after. Please click the boxes on the following pages that reflect your level of satisfaction with each item. Click on the “vote” box after you clicked on your “level of satisfaction” to submit your answer.
For example…
.. Clicking on the first square means, you are very dissatisfied.
.. Clicking on the fifth square means, you are very satisfied.
Then…
…Click ‘vote’ to submit your answer
The Surveys
Pre-Respite Survey
This survey is designed to be taken by individuals who have not yet received respite services. Please click here to take the survey.
Post-Respite Survey
This survey is designed to be taken by individuals who have not yet received respite services. Please click here to take the survey.


